Supporting self‐management after traumatic brain injury Codesign and evaluation of a new intervention across a trauma pathway

Funded by

The Health Foundation Logo

29 April 2019

Published journal: Wiley Online Library

Abstract

Background

Supported self‐management (SSM) is a recognised approach for people with long‐term conditions but, despite the prevalence of unmet needs, little is known about its role for people with traumatic brain injury (TBI).

Objectives

To codesign an SSM intervention with people with TBI and evaluate feasibility of implementation through multidisciplinary staff across a trauma pathway.

Setting and participants

People who had previously been admitted to a Major Trauma Centre following TBI and family members participated in a series of codesign activities. Staff attended SSM workshops and used the intervention with patients in acute and rehabilitation settings.

Methods

We used Normalization Process Theory constructs to guide and interpret implementation. Knowledge, beliefs and confidence of staff in SSM were assessed through pre‐ and post‐training questionnaires, and staff, patients' and families' experiences were explored through semi‐structured interviews. Qualitative data were analysed thematically, and clinical measures were mapped against a matched sample.

Results

Codesigned resources were created and used within an SSM approach for which 110 staff participated in training. Evaluation demonstrated significant differences in staff SSM confidence and skills, following training. Qualitative evaluation revealed adoption by staff, and patients' and families' experiences of using the resources. Challenges included reaching staff across complex pathways to achieve collective implementation.

Conclusion

This is the first project to demonstrate feasibility of SSM for people after TBI starting in an acute trauma setting. Through an open approach to codesign with a marginalized group, the SSM resources were valued by them and held meaning and relevance for staff.

Citation

https://doi.org/10.1111/hex.12898

You might also like...

Newsletter feature

Sustainable improvement: growing a greener NHS

Newsletter feature

How does the improvement work we fund contribute to achieving NHS net zero? 

Press release

CQC’s report suggests this winter is set to test the health and care system like no other

Press release

Health Foundation response to the Care Quality Commission's annual State of Care report.

Event

Webinar: NHS recovery – how do we ‘build back better’?

Event

A panel discussion exploring the extent of the backlog facing the NHS in the recovery period and how...

Watch video

Kjell-bubble-diagramArtboard 101 copy

Get social

Our briefing reveals the devastating and lasting impact of COVID-19 on the more than 4 million people asked to shie… https://t.co/UyH6IHIaxE

Follow us on Twitter
Kjell-bubble-diagramArtboard 101

Work with us

We look for talented and passionate individuals as everyone at the Health Foundation has an important role to play.

View current vacancies
Artboard 101 copy 2

The Q community

Q is an initiative connecting people with improvement expertise across the UK.

Find out more